Curtis Anthony

 

Hey guys, this is about a little guy who went to Elbow Lane Nursery School last year (warrington), a school I've gone to 2x weekly for 2 years now. I saw a little boy in his class and just feel so badly for them.

I know Christmas is a crazy time for everybody, but if you could just give one dollar it would be awesome. I'm going to circulate this at work as well, since many of us go to Elbow Lane and have come in contact with him. I'm waiting to hear back to see if his website is up. I will mail all donations, or just drop them off at the school (each class has a collection jar).

Please let me know by Friday if you can contribute (only a dollar, that's fine!).

You can mail it to me.
xo
Caitlin
ps- you can also go to a fundraiser for him...info on preston and steve's website.


THE CURTIS ANYTHONY PAY IT FORWARD PROJECT



My name is Ellen Kozac. I am writing because I have this crazy idea that everyone reading this has $1 to spare. Just $1. We need to raise $50,000.00, and I think we can do it $1 at a time. We need 50,000 people giving just $1 so that my little friend Curtis Anthony will have the opportunity to fight for his life.

Curtis is the son of Donna Kapper and Paul Anthony. Curtis just turned 5 years old and is diagnosed with Batten Diseases. Batten Disease was first described in 1826, more than 170 years ago. Batten Disease in the common name for a group of diseases known as neuronal ceroid lipofuscinosis, and is one of the more common of the neurodegenerative diseases. It is also one of the diseases found in a group known as lysosomal storage disorders. At this time there is neither treatment nor cure.

There are five major forms of Batten disease, defined by age of onset, pathology and gene identification.

Batten Disease is rarely diagnosed immediately and is often mistaken for epilepsy, mental retardation, retinitis pigmentosa, even schizophrenia in adults. An ophthalmologist can observe pathological changes in the retina. This often provides one of the first diagnostic clues. It’s onset is characterized by beginning vision loss, seizures, clumsiness, personality and behavior changes. Batten Disease causes continuing physical and mental deterioration leading to death.

Curtis was tested to participate in an experimental stem cell program in Oregon and over this weekend was rejected because he failed to test higher then a 12 month old. Curtis is a magnificent delicious child and Batten Disease is sorely under-investigated and thus under funded in research monies. The Anthony family will need at least $50,000 to travel to China to participate in a stem cell experimental program there. Like most families, Donna and Paul just do not have the funds to make this happen. Donna and Paul are my friends and are amazingly dedicated, loving, working parents-just trying to get their son help. Time is running out. PLEASE help.



This is how we’ll make this work. Just email this letter to EVERYONE you know. EVERYONE in your address book and ask them to forward it to EVERYONE they know. It will turn into 50,000 people in a flash. This is easy. Curtis and his family will have the really hard part. Today is Friday November 9th, 2007. Let’s see how long it takes us to help them.